We'll publish the fifth draft of the checklist to invite comments from patients and physicians to help us fine-tune the document before finalizing it and publishing it online.
What do you think of the current content? (not the format since the Word document didn't load perfectly) Please make comments, especially hypermobile persons and their families and family physicians. This is a complex disease and we are complex people, so we start with a complex form.
The patient would have one of these on their cell phone or computer or hard copy and note what symptoms and signs are "leading the way" in a negative sense. The physician would follow the form inputs from the patient via the patient portal of their EMR or hard copy and add/ subtract/prioritize care based on what seems to be happening. Etc.
Ehlers-Danlos
Signs and Symptom Checklist
Date ________________
Name
_____________________________________________
Neurological
system
New Old Stable Doctor Use
o o Y
N Obsessive
Compulsive Disorder o
o o Y
N Major
Depressive Disorder o
o o Y
N Social
Anxiety Disorder o
o o Y
N Body
Dysmorphic Disorder o
o o Y
N Chiari
I Malformation o
o o Y
N Syringomyelia o
o o Y
N Tethered
Cord Syndrome o
o o Y
N Migraines o
o o Y
N Syncope
Dizziness o
o o Y
N Paresthesia o
o o Y
N Dysautonomia o
o o Y
N Decreased
Vibrational sensation o
o o Y
N Other________________________ o
Musculoskeletal
System
New Old Stable Doctor Use
o o Y
N Joint
Instability o
o o Y
N Chronic
Muscle Pain o
o o Y
N Chronic
Muscle Fatigue o
o o Y
N Chronic
Muscle Weakness o
o o Y
N Dystonia o
o o Y
N Osteopenia/Osteoporosis o
o o Y
N Osteoarthritis o
o o Y
N Bunions o
o o Y
N Flat
Feet o
o o Y
N Scoliosis o
o o Y
N Kyphosis o
o o Y
N Early
Degenerative Disk Disease o
o o Y
N Herniated
Disks o
o o Y
N Other________________________ o
Cardiac
System
New Old Stable Doctor Use
o o Y
N Mitral
Valve Prolapse o
o o Y
N Tricuspid
Valve Prolapse o
o o Y
N Aortic
Root Dilation o
o o Y
N POTS
o o Y
N Other________________________ o
Optical
System
New Old Stable Doctor Use
o o Y
N Scleral
fragility o
o o Y
N Corneal
deformation o
o o Y
N Other________________________ o
Vascular
System
New Old Stable Doctor Use
o o Y
N Arteriole
rupture o
o o Y
N Abdominal
Aortic Aneurism o
o o Y
N Neurally
Mediated Hypotension o
o o Y
N Varicose
Veins o
o o Y
N Other________________________ o
Metabolic
System
New Old Stable Doctor Use
o o Y
N Early
Lipid Abnormalities o
o o Y
N Vitamin
C Deficiency? o
o o Y
N MTHFR? o
o o Y
N Drug
Sensitivity o
o o Y
N Other________________________ o
Gastrointestinal
System
New Old Stable Doctor Use
o o Y
N Irritable
Bowel Syndrome o
o o Y
N Constipation o
o o Y
N Gastritis o
o o Y
N Gastroesophageal
Reflux Disorder o
o o Y
N Delayed
Gastric Emptying o
o o Y
N Other________________________ o
Gynecological
System
New Old Stable Doctor Use
o o Y
N Premature
Rupture of Membranes o
o o Y
N Rapid
Labor and Delivery o
o o Y
N Uterine
Rupture o
o o Y
N Other________________________ o
Dermatological
System
New Old Stable Doctor Use
o o Y
N Hyperextensible
Skin o
o o Y
N Translucent
Skin o
o o Y
N Fragile
Skin o
o o Y
N Soft/Velvety
feel of skin o
o o Y
N Hemosiderin
Staining o
o o Y
N Stretch
Marks o
o o Y
N Atrophic
scarring o
o o Y
N Wound
dehiscence o
o o Y
N Prolonged
bleeding o
o o Y
N Easy
Bruising o
o o Y
N Other________________________ o
motion sickness, "brain fog", double jointedness, dislocations, tendonitis, TMJ, joint pain, muscle tenseness, low blood pressure, nearsightedness, diarrhea, mast cell activation disease, malabsorbtion, gluten sensitivity, uriticaria, eczema, dark circles under eyes, thin hair
ReplyDeleteTo add to the above:
ReplyDeleteGum sensitivity, ineffective "cain " pain injections, gum sensitivity, easy tearing of stitches, incompetent cervix, extended surgical recovery, keloids, excessive scar tissue, ovarian cysts, repetitive subluxations, high pain tolerance, non-recouperative sleep, fall asleep easily from fatigue but not staying asleep, preterm labor, slight anemia (consistent 10-11 hemoglobin)
Vitamin D deficiency (under 10)
ReplyDeleteShort Term Memory Loss, Poor Concentration, Crainiocervical Instability, Blurry Vision, Eye Strain, Broken Blood Vessels, Tachycardia, Spasms, Muscle Cramps,Involuntary Movements, Tongue Coating, Frequent Yeast/ Uti ? Kidney Stone, Adenomas, (Pituitary, Breast, Ovarian Cysts) Vitamin Deficiencies B, D, C Neuropathy, Raynauds, Ganglion Cysts, Carpul And Cubital Tunnel, Pinched Nerves, Sciatica, Extreme Pez Cavus, Arthritis, Chondromalacia, Patellofemoral Syndrome, To Name A Few, The List Goes on
ReplyDelete