Wednesday, February 13, 2013

Fibrodysplasia Ossificans Progressiva (FOP), Behcet's Syndrome and Rare Disease Day

After introduction and disclaimer, Dr Synonymous (aka, Dr Jonas) comments on recent events with the death of his father in law.  Emmert Leroy Michael 1922-2013
Next he discusses a rare disease: Fibrodysplasia Ossificans Progressiva (FOP).  He follows information about it through the IFOP web site/ Facebook site, IFOP  then to NHGRI -National Human Genome Research Institute, NORD -- Rare Diseases and OMIM (Online Mendelian Inheritance in Man) with in depth comments from those sites.
He notes a feature about Behcet's Syndrome  More info on Behcet's  on the NHGRI site before speaking of National Rare Disease Day, February 28th.  He then reviews Patient and Health Care  Blogs including Dr Fat to Fit Dr Fat, Final Trick Click Here  and Medical Mojave .  Dr Kenny Lin writes about recent medical studies about Calcium Supplements on Common Sense Family Doctor.
Remember National Rare Disease Day. RDD/

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